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|Paynesville Press - August 11, 2004|
Four-month-old awaits bone marrow transplant
Max Butler, the four-month-old son of Chad Butler (a 1983 PHS graduate) and Missy Kampa of St. Cloud, is fighting for his life against a rare genetic disorder.|
Max was diagnosed with severe combined immunodeficiency (SCID) just over a month ago. When changing his diaper, Max's parents noticed some rashes and skin infections. When they wouldn't go away, they decided to do some blood work.
SCID is a rare genetic disorder that stops Max's body from producing antibodies or fighting infections. In the most common form, SCID is linked to the X chromosome, making it affect only males, but other forms can affect females.
The only cure for Max's disorder is a bone marrow transplant. Max is currently waiting in Ohio at the Cincinnati Children's Hospital for the perfect match so he can get a transplant.
SCID is commonly called "Bubble Boy Syndrome" because the holder is so susceptible to infections and germs. For this reason, Max's parents have kept Max confined to their home in St. Cloud. They also are used to taking multiple showers during the day and doing up to four loads of laundry each day.
Max's parents, who are both nurses at the VA Medical Center in St. Cloud, are in Cincinnati with Max and are staying at the Ronald McDonald House.
Max is the grandson of Dick and Jan Butler of Paynesville.
A benefit fund for Max has been set up at the Great River Federal Credit Union in St. Cloud. Send donations to: Maxwell Butler Benefit Fund; c/o Great River Federal Credit Union; 1532 W. St. Germain; P.O. Box 208; St. Cloud MN 56302. In addition, a benefit dinner will be held for Maxwell on Sunday, Sept. 19, starting at 2 p.m. at the VFW Post #428 on 18th Avenue North in St. Cloud. Dinner will be served from 5 to 9 p.m.
To track Max's progress, his parents have set up a web page at www.caringbridge.org/mn/maxbutler.
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